I Love to Read Month: Parkinson’s Stories & Resources
Published: February 1, 2024

Davis Phinney Every Victory Counts Manual & Manual for Care Partners

First published in 2010, the Every Victory Counts® manual broke new ground as the only resource of its kind, devoted solely to the principle of proactive self-care and a holistic approach to managing Parkinson’s. In subsequent editions, it has gained international recognition as a superb and comprehensive resource for changing the way people live with Parkinson’s. 

Tim Hague Sr., Perseverance 

An inspiring story of beating the odds and learning to overcome–no matter what life hands you.

After starting a family and flourishing in his career, Tim Hague was struck by misfortune. The irritating tremor in his foot turned out to be early onset Parkinson’s disease. He was only 46 years old. But what seemed to be an end became a new beginning. Just three years later, Hague won the inaugural The Amazing Race Canada (with his son, Tim Jr., as his teammate). His remarkable life story shows that perseverance is not just a matter of willpower: it is a skill that can be learned and honed.


Joe W. van Koeverden, Grab the Spark 

Joe W. van Koeverden, MBA, PwP, has lived with Parkinson’s Disease (PD) for ten years. For the last twenty years, he worked in senior management as a CEO, president, and CAO. He’s twenty years cancer free and has been clean and sober for over thirty-five years. My Parkinson’s Journey and Finding My Creative Spark is his first book. He hopes to motivate and provide a positive message for those living with PD with short stories and poems of his experiences.

Michael J. Fox, No Time Like the Future

With his trademark sense of humor, Michael shares personal stories and observations about illness and health, aging, the strength of family and friends, and how our perceptions about time affect the way we approach mortality.

Filled with humorous and thoughtful anecdotes and reflections, the book offers insights into a man who knows struggle all too well, but refuses to let it get in the way of living.TIME

A moving account of resilience and hope, as well as his hard-earned wisdom about health, illness, aging and mortality.USA TODAY

Trisha Hassler, My Nana Has Parkinson’s 

This is an illustrated children’s book about a grandmother with Parkinson’s Disease. It is very accessible and aimed at helping kids understand what it means for them when a family member is diagnosed.

Sheryl Jedlinski, Parkinson’s? You’re Kidding Me, Right? 

In this book, journalist Sheryl Jedlinski tells the story of her 20-year journey with Parkinson’s disease in a way that empowers readers to face this degenerative neurological disease with courage, grace, and dignity. Sharing the knowledge, coping strategies, and experiences that have helped her live well with Parkinson’s, Sheryl offers fellow patients insights that they crave, but rarely receive. She also uses her humorous adventures to address adjustments that must be made to enjoy a full, productive life.